Lockport Union-Sun & Journal Online

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February 14, 2014

Fundraiser slated for Lockport man with ALS

Lockport Union-Sun & Journal — When someone who has helped others is in need, the local community steps up to show its support. With assistance from the Rainbow of Help, “Kelley’s Crusaders” are working to raise funds to help a Lockport man struggling with a serious illness.

Ken Kelley is no stranger to hard times. After youthful experimentation with alcohol and drugs, Kelley turned his life around and enjoyed decades of sobriety. That made him sensitive to the difficulties of addiction, and he reached out to many others referred to him throughout the years, helping them to face the demons and reclaim their lives. He was never too busy to counsel or aid someone in need.

As a self-employed contractor, Kelley is well-known in his Lockport community. Known as a good friend and neighbor, Kelley never refused to help others in need whenever he could. Life was rosy for Kelley and his three children until he fell from a roof during repairs to help a friend. The fall was a short one but the damage was lasting and extensive, requiring lengthy hospitalization. His leg was so mangled they needed to rebuild his ankle and foot with metal. Laid up for a long time, Kelley continued to work as much as he was able, even remodeling a home from a wheelchair.

Long-time family friend John Cole said “He never asked for a handout or assistance, just to be able to keep working. He was so determined; he would go to the site and roll himself around on an office chair to oversee the work.” Family and friends thought nothing would keep Kelley down. That is, until a doctor noticed that there was more going on with his gait than just a bad limp from his accident.

Several years ago, Kelley was diagnosed with ALS — Lou Gehrig’s disease. The onset of ALS is insidious, with muscle weakness or stiffness as early symptoms. Progression of weakness, wasting and paralysis of the muscles of the limbs and trunk, as well as those that control vital functions such as speech, swallowing and later breathing, generally follows. Although the life expectancy of an ALS patient averages about two to five years from the time of diagnosis, this disease is variable and many people live with quality for five years and more. 

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