Lockport Union-Sun & Journal — After the age of 2, kids with cystic fibrosis wear a vest to help with the therapy. Mason will be measured for a vest soon, Phipps said.
But the chest therapy can be a challenging task to administer, with keeping track of time while holding the child upright. So, to help, Phipps developed a cell phone application that gives the user a choice for different alerts and tracks time for each position on the body, while allowing for rest breaks.
The app, available for the iPhone and iPad, has been uploaded to the Apple Store and can be found by searching “chest PT.” It’s been downloaded over 1,000 times.
For Great Strides, participating teams are encouraged to show team spirit with many of them dressing up with a certain theme. And there was a lot of community involvement in last year’s walk, Phipps said.
“It’s very family oriented,” Phipps said.
Last year’s Lockport walk had 119 participants raising $72,000, Burow said. This year’s goal is to have 200 participants and raise $82,000 for the foundation.
“We have a really great support base of families here in Lockport and surrounding areas,” Burow said.
In 2013, a total of $40 million was raised from the 600 Great Strides walks held across the country. Folks can sign up individually or with a team at the foundation’s site, www.cff.org. Teams can set up their own fundraising sites.
Not only has progress has been made in the fight against cystic fibrosis, but great strides have been made in spreading awareness about the disease, Phipps said.
“When Mason was diagnosed two years ago, I didn’t know what the disease was,” he said. “I would ask a lot of people about it and they had no idea. I’m surprised, in the last two years I rarely find someone who doesn’t know what cystic fibrosis is. I think it’s all of the work the foundation has done.”GREAT STRIDES MAY 17 Check-in: 11 a.m. Walk: noon Distance: 5k Location: Widewaters Park Pavilion Contact reporter Joe Olenick at 439-9222, ext. 6241 or follow him on Twitter @joeolenick.