The numbers are staggering: across New York state, some 400,000 people are living with Alzheimer’s disease. Another 1.2 million people, usually family or friends, provide some kind of care for them. And at this moment, the disease cannot be prevented or slowed and it is, without exception, fatal.
But there is hope for the first survivor of Alzheimer’s disease through the research funding efforts of the Alzheimer’s Association. The association, including a chapter office in Western New York, leads the country in funding scientific and clinical studies that will one day lead to methods to prevent, treat and end the disease and that funding is supported by the Walk to End Alzheimer’s.
From every corner of WNY, thousands of individuals, corporations and facilities raise and donate funds to Walk teams made up of families, co-workers and friends who recognize the value not only of supporting research, but of funding local programs that provide care and support for all impacted by dementia.
On Saturday, Oct. 5, roughly 750 people will take part in the family-friendly Lewiston Walk in Artpark at 450 South 4th St. The event includes local vendors, basket and 50/50 raffles, refreshments, photo opportunities and a Promise Garden. The garden is filled with bright pinwheel flowers in colors that represent reasons people walk: purple to honor someone they lost to dementia, yellow for care partners, blue to honor those living with dementia and orange to show general support of efforts to end Alzheimer’s disease. The flowers are given to each registered participant who can then personalize them and carry them as they walk or plant them in the garden.
The event site opens at 9 a.m. with access to vendors, entertainment, food and fun. A short opening ceremony at 10:05 a.m. will be emceed by Tom Schuh, a long-time volunteer, and will include remarks from co-chairmen John Tomes of Wheatfield Commons and Jamie Mullane of The Home Care Partners.
Participants who fundraise at least $100 will earn an official 2019 Walk to End Alzheimer’s purple tee shirt, with other incentives earned at higher fundraising levels. Last year, the Lewiston Walk raised more than $100,000. Local fundraising is bolstered by corporate support from Platinum Sponsors, including WDCX Radio. “We’re a part of the Walk to End Alzheimer’s because we want to bring love and hope and encouragement to families -just like ours- that have been affected by Alzheimer’s and other dementia,” said on-air host Neil Boron. “We also want to help provide for the needs of the Alzheimer’s Association in advocacy, education, research, support, respite care, etc. but most importantly, we want to help find a cure and end Alzheimer’s forever.”
The law firm Cellino and Barnes has been a sponsor for several years. “Many diseases that tormented mankind for centuries were thought to be impossible to stop … from smallpox to tuberculosis to diphtheria to polio. Now science has eradicated these and many other “incurable” diseases,” says partner Steve Barnes. “Together we will add Alzheimer’s to this list.”
Great Lakes Health System is another Platinum sponsor. “We are proud to partner with the Alzheimer’s Association to raise awareness and funds for the millions of individuals living with Alzheimer’s as well as those who care for them,” said Jody L. Lomeo, president and CEO of Kaleida Health and Great Lakes Health System of Western New York. “The Walk to End Alzheimer’s unites our entire community – family, friends, co-workers, and more – in a display of combined strength and dedication in the fight against this devastating disease.”
Aetna has returned for a second year of high-level support of the event.
Local sponsors of the Lewiston Walk to End Alzheimer’s include CSS Construction, Linde PLC and Wheatfield Commons.
Registration is quick and easy online at alz.org/Walk. Questions about the local Walk and the WNY Chapter can be addressed at (716) 626-0600.
Walks are also scheduled on Sept. 14 in Buffalo, Sept. 21 in Batavia and Dunkirk, and Sept. 28 in Medina and Allegany.
Monica Pomeroy is the communications director of the WNY Chapter of the Alzheimer’s Association.